BIOPSY RESULTS

Hi everyone. It seems like we are always on the way TO Pittsburgh or getting HOME from Pittsburgh. Soon after we got back home after the seizure related hospital stay, we got the call that the biopsy results were in. My stomach instantly flipped, Brian fell apart, and Al looked like he was hit by a truck. We hurried to get ready to go and had a very long, quiet, scared, somber trip. We were meeting the surgeon at his office. Originally he wasn’t going to be able to meet us until Monday, but I think he sensed how fragile we all were at that point. He kindly fit us in between surgeries. We were about the last to enter his waiting room, but about the first to be called in.

It IS a tumor. But, it is a low-grade, #2 tumor. That means it is one level above the type usually found in a child. #3 and #4 are far more dangerous. At this time, it is NOT malignant…but is a type that COULD in the future change to a malignancy. It is EXTREMELY slow-growing—he may have had it since birth. It has NOT infiltrated the brain. The surgeon and the neurologist recommended the same specialist to us—he is considered the BEST of the best in Pittsburgh. It is difficult to get an appointment with him, but the surgeon sent an email requesting he take Brian. Brian got his appointment this afternoon. The surgeon believes he will be treated with chemo—surgery is too risky because the tumor is situated behind the motor (movement ) area of the brain and close to the speech center. A tumor of any kind is not a good thing, but Brian is young,extremely healthy, and fit. He has been training to run the Pittsburgh marathon. He has now cancelled out of that, but his fitness will serve him well. The tumor was found by accident really! He had an MRI because of soreness in his neck and his PCP saw the spot…so it was found very early—no symptoms. As bad as a tumor sounds, there are many positives to Brian’s situation. Many people have it worse. Brian will not be able to drive for 6 months. Luckily there is a bus stop down the hill from his apartment. There is still a possibility of more seizures, but he is doing well now on his new meds. We are praying for the best outcome and have been flooded with best wishes from many, many people—friends as well as strangers. Our small family will stick together to see Brian through this. I keep thanking all of you that expressed concern, but I could never thank you enough. Love you all–Jan

Copyright 2012

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10 comments on “BIOPSY RESULTS

  1. Susannah says:

    My thoughts and prayers are with you. Tell your Brian to keep his chin up and be strong. God bless you all.

    Susannah

  2. Janet says:

    Hi Jan,

    I am glad to hear that it is not malignant. I have been through that and it is not fun.

    Chemo isn’t that fun either but it is better than surgery. Been through both of those too. But it is different for each person.

    I can’t remember if I told you this phrase before, I found it on a new blog friends blog:

    If God brings me to it, He will get me through it.

    I believe that 100%. Stay close to Him, stay close to each other. Also remember that each of you will have your own way of dealing with this. Especially Brian. Any way he or you all choose to deal with it is the RIGHT WAY for you. To patient with each other. And help each other. 🙂

    Sorry that is just the mom in me. To tell people what they probably already know anyway. 🙂

    You are all in my thoughts and prayers.

    Have a good night or day. Take care, Janet W

  3. annie says:

    Continuning to pray for him, and you.
    Hoping all goes well with the treatments.

  4. Cindy says:

    So glad that it is not malignant.
    Keeping all of you in my prayers.
    hugs,
    Cindy

  5. Cindi Loretz says:

    There is some good news in that and just knowing what he is fighting now has to be a relief! I am keeping you all in my prayers!
    Be blessed, God is with you!

  6. betty crowe says:

    Jan I could not find your blog again but have been praying daily for you all. I am so relieved it isn’t malignant. The prognosis sounds good. The road ahead with the treatment will be hard, but you all can do it. It is wonderful to have someone in the profession be there for you. My granddaughter and her husband are physicians and it has been such a help making decisions for Amanda. One thing to be sure of, bloggers for the most part are prayers and the more said the better. Please keep us up dated and I will continue to pray for you all.

  7. Angie Berry says:

    Jan, in a situation like this… this kind of news is very good! You are right, there are so many people that have it worse and there are many positives to Brian’s situation. For that, we are very thankful! Thankful that it was caught early before it was too late. Thankful that it is treatable. Glad you have many people supporting and encouraging you.

    Always praying for Brian and your family, every day. Wish I could do more. Love and hugs, my friend~

  8. Steph says:

    Jan, as bad as it may seem, you have found good news through it all. I am proud of you. Now you all know and now the healing can begin. Thanks for being strong and sharing all this with us. It may make it a little less scary for any of us who may have to go through it. You are such a good supportive mother. -Steph-

  9. marly says:

    I’ve been in that position of waiting for results and I know the feeling in the gut that is almost impossible to explain. It’s a blessing that it was caught early, hasn’t infiltrated, and also that it can be treated without surgery. I hope your Brian is better than ever soon!

  10. Sheila says:

    Hello Jan,
    Just getting on here this morning, catching up on the news on Brian. Have kept you folks in my thoughts and prayers. Praying the treatments will take care of the tumor and Brian will remain strong. It’s a blessing that you live fairly close to him especially during a time when he really needs his parents.
    Stay strong and positive.
    hugz,
    Sheila

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